What a long, strange road it’s been.

Hello, friends! It’s sure been a while since I posted here, hasn’t it? The same was true of everywhere but Facebook until I started posting on Instagram again recently.

I’ve been dealing with a lot of brain fog and physical limitations for the past year, and I strongly suspect that everything has continued to be so difficult because of lingering side effects from my time on Cymbalta. I’m very happy to say that I’m finally getting more functionality back, thanks to eating as healthily as I can manage, figuring out which supplements help me the most, becoming a Reiki practitioner, starting to make my own essential oil blends, and using small amounts of MMJ to keep my pain from becoming unbearable. It’s been a long, hard road away from the pharmaceuticals that I’d hoped would help give me my life back. I’m now taking the reins myself when it comes to my fibro and chronic pain, and it feels amazing to be healing.

I’ve been doing monthly auctions to help make ends meet over in my event group on Facebook. There’s one happening right now, ending Thursday evening. There are still many pieces without any bids. If you have a moment. pop over and join the group so you’ll be ready to bid if something tickles your fancy — I’ll be adding even more items today and possibly tomorrow. Here’s a peek at some of the items…

New fundraiser pieces – awareness ribbons & butterflies!

I was inspired to make these purple butterfly pieces a couple of days ago. There are still two left with wee black glass crystals, and one with lavender crystals. They’re super adjustable; I’m modeling one at the shortest length and one at the longest length. (My neck is about 17″.) Visit the FB fundraiser to snag yours, read more or see what else is available. (If you’re more the grab bag type, our GoFundMe campaign is still open as well, or I am happy to barter items from our Amazon wishlist for credit to my shop.)

Adjustable Purple Butterfly Necklaces

After recently posting my fibro warrior pendants, I got a LOT of requests for pink ribbon pieces. Here are the first of those! They can also be found in the FB fundraiser.

So far, the fundraisers have raised $349 this month — $174 in donations for jewelry and other gifts; $155 in auction items and $20 from the GoFundMe. Huge thanks to everyone who has had a hand in making that happen, from spreading the word to donating funds or items, bidding, etc. I am so grateful for all of your support while things have been so slow for us.

I apologize for not posting much recently. I’ve just been exhausted most of the time lately, and celebrating small victories when they arise.

Much love and many blessings,
❤ Bri

Fundraisers… Plus save 33%, tonight only!

Hello, friends!

I want to thank everyone who has contributed in any way to either of our fundraisers. Without your help, we’d be in a much worse place at the moment.

Unfortunately, between my shop and fundraisers on GoFundMe and Facebook, I’ve had less than $200 come in during the first half of January. If you can help in any way — from a purchase in my shop or a donation in exchange for jewelry to spreading the word about my work — we would appreciate it so very much!

Fibro/Spoonie Warrior Necklace with New Braided Faux Leather Cord

If you’ve fallen in love with my fibro/spoonie warrior pendants — or any of the others available in the FB fundraiser — but not the organza cords, I now have these braided faux leather cords available. Please add $2 to your donation and let me know by commenting in the FB fundraiser that you’d like the cord swap. (I can also make the spoon pendants with other ribbon colors on request!)

We are still in dire need of several clothing items and some health-related items. If you’re able to purchase any of the above items from our Amazon wish list, I’d be more than happy to set up a gift code in thanks.

Today is also the last day to use the members-only coupon code to save 33% on all regularly priced ready to ship pieces in my shop. If you aren’t already a member, you can join my Facebook group here.

Much love and many blessings,
Bri

New goodies!

First, I am super excited to share my new fibro warrior/spoonie pendants. I’ve made the first batch with purple ribbons, but the ribbon color and cord color/type are customizable. Check out the listing in the fundraiser for more info.

Fibro/Spoonie Warrior Necklace

I’ve also added several auction items donated by ZenithJade Creations, all starting at just $1 plus shipping.

And some sweet new lightweight wooden pendant designs, too.

I also made a beaded piece for the shop a few days ago. I’m very pleased with how this one turned out, so sparkly and sweet! Remember, you can use the code “HELLO2016” to save 25% on all regularly priced ready to ship jewelry in my shop. (In other words, the coupon is not applicable to pieces in the “special deals” section or custom items.)

Sun Goddess Prayer Beads

I’d absolutely love to hear what you think of the new goodies. Wishing you all a beautiful Sunday!

❤ Bri

Appointments up the wazoo!

Poor AJ has been incredibly unwell lately. Though I slept fitfully for twelve hours, I managed to make him an emergency appointment for tomorrow in my half-sleep — and then to call the pharmacy before the cut-off to have meds we just realized we need refilled stat delivered today, since we won’t be here when the delivery guy would be on his rounds tomorrow. Since we can’t ever seem to get all of our meds on the same schedule and we have somewhat major transportation issues most days, I can’t even begin to express how grateful we are for a pharmacy that delivers. I’m also so grateful that our prescriptions have no co-pays with Medicaid, so we don’t have to stress about whether we have funds available when they’re due. Now we just need to make an actual organized list of when they’re all due for refills so we don’t have those “Oh crap!” moments.

I also rescheduled my medical marijuana recommendation appointment for the 7th. I’m really looking forward to being all set again, since my old one expired on Christmas Eve and I really need to keep my CBD tincture around so that I can function more like a normal human being as far as cooking, cleaning and getting my work done, even if I don’t have the spoons to actually make it out of the house most days. Another thing I am beyond grateful for is the fact that I can get the tincture from a dispensary that delivers to my house, though sometimes we’re able to stop by their local shop while we’re out at doctor’s appointments.

Our next appointment after that is to pick up our controlled substance prescriptions on the 15th, and then I’ll be making an appointment to get a cortisone injection in my knee once I’ve gotten the fluid down. The prospect of having the knee surgically drained just sounds like a nightmare, and it wasn’t nearly so swollen when I was religious about icing it several times a day and taking my full arsenal of anti-inflammatories — CBD and mullein tinctures as well as ibuprofen. So that’s one of my main jobs this week, to get that swelling down. I’ve been having trouble with my right knee since Thanksgiving, when I went up and down the stairs at our hosts’ house about 15-20 times in less than 24 hours, to get things from the guest room, tour the house, check on AJ when he wasn’t feeling well, and to use the bathroom. No matter how much I’ve babied it since then, it’s been a mess. I could barely even walk around the apartment until a friend got me a compression sleeve for it.

Whenever we have appointments, barring extenuating circumstances, we go together. We act as advocates for one another because all of this chronic illness stuff is scary enough without having to deal with any part of it — but especially the potential for bad news or not being heard — alone. I also have severe brain fog and his memory is still much better than mine, so he helps me remember things, while I help him stand up for himself. He’s not very good at doing that in general, just with me — which can be frustrating when it’s unwarranted, but I try to remember to take it as a compliment because it means that I’m the one person he trusts enough to always try to be his fully authentic self around, even if it isn’t pleasant for either of us in the moment.

We have all of these appointments to get to, $60 to pay for the MMJ recommendation, and sales have been super slow. I would appreciate it so much if you could take a look at this post and consider whether you might be able to help in any way. Tomorrow is also the last day to use the code “BYE2015” to save 20% on all regularly-priced ready to ship jewelry in the shop — and there are some great already-discounted pieces in the special deals section, too. If you’re in a financial situation like ours, word of mouth costs nothing and definitely helps!

I hope you’re having a good day, lovelies. I’m going to finally have something to eat, and then try to get some beading done. If I’m lucky, I may have some new goodies to post tonight or tomorrow.

Blessings,
❤ Bri

Zip, zoom! There went my day.

I woke up around noon, feeling like I had a surprising amount of energy considering that my rheumatologist appointment was yesterday and I’d spent two days anxious about it and pushing myself into an intentional flare, so that he’d see what I deal with on such a regular basis. I had high hopes of beading all day. And then it felt like someone just snuck up and stole all of my spoons while I wasn’t looking, before I actually got anything accomplished.

Suddenly, it’s ten hours later. I’ve posted the two new pieces that I made  yesterday to my shop, this blog and Facebook. I responded to a few short messages to the Baubles & Blessings page. I went through a package of charms that came in, caught up on page comments… And somehow that was my entire day. I feel like I’ve been thinking through thick mud — and a headache — all day.

Though I have been nearly completely certain that what I have is fibro for a number of years now and that thought was echoed by my former PCP, I hesitated to speak about it publicly for a long time because I was bullied and accused of faking it. Now that I have an official diagnosis, I plan to post here regularly about what it’s like to try to get through life in this body, mainly for those who care about me but don’t get it. If that doesn’t describe you but you get something positive from me sharing my experiences — commiseration, understanding of someone you love, etc — then these posts are for you, too.

For now, I’m going to crawl into bed, get some ice on my knee (which sounds like a preferable alternative to the rheumy’s suggestion that I get it drained), hydrate and do something that doesn’t take a lot of brainpower. My batteries feel like they’re going to need another day or two to recharge, though I’m hoping to be able to do some beading tomorrow and hubby will hopefully have a doctor’s appointment on Thursday, to which I plan on accompanying him.

As always, thanks for being here, being you and being awesome!


Bri

Fibro & Chronic Pain Warrior Necklace: Lite Version

2014-0215-FibroWarrior

I made this necklace because I have dealt with chronic pain for over a decade and now believe that my last doctor’s unofficial diagnosis of fibro is correct. I know how hard it is to deal with chronic pain and invisible illnesses. The purpose of this piece is to help with grounding and pain relief, while also balancing the third eye, heart and root chakras. At the same time, it’s an elegant, beautiful pick-me-up to help you feel like the warrior that you are on days when your body just won’t cooperate. More