Poor AJ has been incredibly unwell lately. Though I slept fitfully for twelve hours, I managed to make him an emergency appointment for tomorrow in my half-sleep — and then to call the pharmacy before the cut-off to have meds we just realized we need refilled stat delivered today, since we won’t be here when the delivery guy would be on his rounds tomorrow. Since we can’t ever seem to get all of our meds on the same schedule and we have somewhat major transportation issues most days, I can’t even begin to express how grateful we are for a pharmacy that delivers. I’m also so grateful that our prescriptions have no co-pays with Medicaid, so we don’t have to stress about whether we have funds available when they’re due. Now we just need to make an actual organized list of when they’re all due for refills so we don’t have those “Oh crap!” moments.
I also rescheduled my medical marijuana recommendation appointment for the 7th. I’m really looking forward to being all set again, since my old one expired on Christmas Eve and I really need to keep my CBD tincture around so that I can function more like a normal human being as far as cooking, cleaning and getting my work done, even if I don’t have the spoons to actually make it out of the house most days. Another thing I am beyond grateful for is the fact that I can get the tincture from a dispensary that delivers to my house, though sometimes we’re able to stop by their local shop while we’re out at doctor’s appointments.
Our next appointment after that is to pick up our controlled substance prescriptions on the 15th, and then I’ll be making an appointment to get a cortisone injection in my knee once I’ve gotten the fluid down. The prospect of having the knee surgically drained just sounds like a nightmare, and it wasn’t nearly so swollen when I was religious about icing it several times a day and taking my full arsenal of anti-inflammatories — CBD and mullein tinctures as well as ibuprofen. So that’s one of my main jobs this week, to get that swelling down. I’ve been having trouble with my right knee since Thanksgiving, when I went up and down the stairs at our hosts’ house about 15-20 times in less than 24 hours, to get things from the guest room, tour the house, check on AJ when he wasn’t feeling well, and to use the bathroom. No matter how much I’ve babied it since then, it’s been a mess. I could barely even walk around the apartment until a friend got me a compression sleeve for it.
Whenever we have appointments, barring extenuating circumstances, we go together. We act as advocates for one another because all of this chronic illness stuff is scary enough without having to deal with any part of it — but especially the potential for bad news or not being heard — alone. I also have severe brain fog and his memory is still much better than mine, so he helps me remember things, while I help him stand up for himself. He’s not very good at doing that in general, just with me — which can be frustrating when it’s unwarranted, but I try to remember to take it as a compliment because it means that I’m the one person he trusts enough to always try to be his fully authentic self around, even if it isn’t pleasant for either of us in the moment.
We have all of these appointments to get to, $60 to pay for the MMJ recommendation, and sales have been super slow. I would appreciate it so much if you could take a look at this post and consider whether you might be able to help in any way. Tomorrow is also the last day to use the code “BYE2015” to save 20% on all regularly-priced ready to ship jewelry in the shop — and there are some great already-discounted pieces in the special deals section, too. If you’re in a financial situation like ours, word of mouth costs nothing and definitely helps!
I hope you’re having a good day, lovelies. I’m going to finally have something to eat, and then try to get some beading done. If I’m lucky, I may have some new goodies to post tonight or tomorrow.